Vision
ur vision is to advance knowledge and services for people with FND in Australia, so that Australian’s affected by FND may live a fulfilling life and reach their full potential.
How we got here
n April 2017 we registered the first Australian FND charity – FND Hope Australia Inc. to support Australians affected by FND and to advocate for increased awareness of FND in Australia. Over the first 18 months of operation it became clear that we urgently needed to offer more than ‘hope’. There was a dire need for practical support services and education and training for health professionals was needed to improve the quality of care people were experiencing.
At a general meeting in December 2018 the board and ordinary members unanimously decided to re-brand the organisation as ‘FND Australia Support Services’, with the aim to offer support services, advocacy, information, education and training and to advance research into the condition.
Legal Structure of the Association
FND Australia Support Services Inc. (‘the Association”) is an Australian registered charity.
FND Australia Support Services Inc. is the only organisation supporting Australians with Functional Neurological Disorder. Because it is a registered charity, the income of the Association is exempt from Income Tax. All Board and Committee positions are voluntary, without remuneration.
The Association is registered with the Australian Taxation Office under Australian Business Number (ABN) 59 414 792 013 and with the Australian Charities and Not-For-Profits Commission.
Gifts, Bequests and Donations
Gifts, bequests and donations in support of the Association’s work can be made at any time, and will be gratefully acknowledged. The Association has registration as a Deductible Gift Recipient, which means that all donations over $2 are tax deductible.
Executive Team
Dr. Katherine Gill
B.Tech. (Bio), B.Sc. (Hons, H1), M.O.T., Ph.D.
President
Kate is the founding President of the first FND Australian charity in April 2017. Kate is a Registered Occupational Therapist and has worked in a number of mental health organisations in senior management roles. She is also a researcher and is experienced in medical and mental health research.
Kate brings many skills and experience to her position as President for FND Australia Support Services, but it is her lived experience in FND that supports her passion and experiential wisdom to advance FND knowledge and services in Australia.
Kate G is also a founding member and past Chair of the Consumer Led Research Network. In 2018 Kate was awarded the SANE Australia Hocking Fellowship to advance FND knowledge and awareness in Australia based on lived experience evidence. In 2019, Kate received support from the National Mental Health Commission to undertake a review of people’s lived experience of FND. This is available at https://www.mentalhealthcommission.gov.au/publications/experiences-functional-neurological-disorder-summary-report
Kate continues to lecture at several universities about FND and is engaged in research projects on FND and various mental health projects.
Sue Hoogenbosch
Secretary
Sue was appointed Secretary of the Charity in June 2022 and has been an active and valued member of the FND Community since 2016. Prior to becoming unwell with FND in 2016, Sue worked in vocational education commencing as a teacher then coordinator for a number of departments across three regional sites, working at all levels from teachers to department and campus managers, then undertaking further training as an auditor. At the time Sue lived in regional NSW also helping her husband manage three beef cattle farms.
Sue’s lived experience with chronic illness and disability underscores her keen interest in representing and advocating for those in the community who have interactions in the health setting. Sue volunteers her time as a Consumer Representative with the Wide Bay Hospital and Health Service Queensland and enjoys this role immensely.
Family and community are Sue’s passion, mother of two beautiful daughters and wife of 27 years with Marc, Sue is an inspiration to all who meet her.
Volunteers
Kate Matheson
Volunteer
Graphic Artist
Official Supplier of FND Australia Support Services Merchandise
She/Her
Graphic Artist
Official Supplier of FND Australia Support Services Merchandise
She/Her
Kate lives in Beaudesert Qld and was diagnosed with FND in August 2021. Kate is a keen photographer and opened her new Etsy online store, ‘kraftydesignsbykate’, designing eye catching merchandise with her beautiful photography in print. Kate wanted to do more for the FND Community and has information on FND with every item you click on. We collaborated with Kate to design snazzy and comfortable merchandise for FND Australia Support Services in January of 2023. Kate volunteers her outstanding creative talents in graphic design for our programs and content for our social media platforms.
Kate joined our organisation in February 2023 and is a highly valued member of our volunteer team. Kate is a very proud Mum and Grandma, and her passion is photography, camping, painting & family. Kate is married to her husband Wayne & they just celebrated 30 years together. They have 3 kids & 4 grandchildren. Previously to Kates diagnosis she was a Palliative Aged Care Nurse & Support Worker.
Ash Davis
Facebook Moderator
Ash is known as the Crazy Bird Lady, the name is quite fitting considering Ash has four Rainbow Lorikeets and one very cheeky flirty Indian Ring Neck, can’t forget her German Shepherd Dexter!
Ash was born and raised on the Darling Downs in Queensland; she found a passion for Disability at a young age in primary school. She spent every school holidays volunteering at a local endeavour centre and stepped out of high school into the equivalent of full-time employment in Disability. Ash explored Mental Health, but after 2 years she returned to what she knew and loved.
In November 2022, Ash had just turned 30, was living her best life, buying her own home, and working her dream job, little did she know a week later her life would change forever.
Ash experienced stroke like symptoms, going into hospital, after a week and numerous tests Ash was sent home; less than 12 hours later she went back into hospital, after a few days Ash was diagnosed with Functional Neurological Disorder.
Fast forward to now, Ash is taking day by day, still getting used to living life with FND, she is thrilled with the opportunity she has been offered to volunteer to support others with FND.
We need your partnership
Let’s discuss how we can partner to advance research, knowledge, awareness and services for Australians with Functional Neurological Disorder.